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It's the outcome no parent ever wants to hear — your child has a fatal disease. That's the reality Jen and Samir are facing after learning their 6-year-old son Carter has Sanfilippo Syndrome. Nicknamed a "Childhood Alzheimer’s," Carter will lose the ability to talk, swallow, walk, develop seizures, suffer severe dementia and die, unless a clinical trial gets up and running. If you would like to help, head to SavingCarter.com for more information.

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