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Since she was only two days old, Lily Mackey from Marietta, Ohio has struggled with a very sensitive skin condition called recessive dystrophic epidermolysis bullosa (RDEB). Her skin is so delicate to the touch that if she comes in contact with any amount of friction, her skin peels off, blisters and leaves open wounds. In order to prevent life threatening infections, her mother Faith wraps her in bandages like a real-life "mummy" as she would say.

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